Jen and Pete

Jen and Pete St. Aubin were overjoyed to find out they were expecting their first child in January 2014. The pregnancy progressed uneventfully until the routine 20 week ultrasound when the baby was diagnosed with a rare genetic kidney disease known as Autosomal Recessive Polycystic Kidney Disease (ARPKD). It is a recessive genetic disorder that affects approximately 1:20,000. Jen and …